What is Von Willebrand disease?
The latest clinical trials for Von Willebrand Disease: enrolling participants in the UK now
Hemab is actively looking for people with Von Willebrand Disease Type 1 in the UK to take part in the Velora Discover research study. Participants will be paid for their time and any travel or expenses. If you are interested, complete the patient form below and we can help you start the enrollment process right away.
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Patient survey
We’re conducting a survey to understand more about the Von Willebrand disease community and to enable access to more resources and information for those that are interested. Your email address will be used to share information about Von Willebrand disease and resources only, you can opt out at any time. Individuals should have proof of diagnosis to share.
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About Von Willebrand Disease
Understanding Von Willebrand Disease
What are the three types of Von Willebrand disease?
How can I get information on clinical trials for Von Willebrand disease?
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If you have not been diagnosed with Von Willebrand disease and you would like to apply for one of our other patient programs, please select where you would like to start.
We will ask the necessary health information to confirm your eligibility for our free genetic testing, genetic counseling, or patient resource programs.
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For three years, we were guessing, not knowing the cause of husband’s symptoms. The most his diagnosis was narrowed to was "maybe FTD" or "possibly early-onset Alzheimer’s." We needed to put an end to the uncertainty. I applied for free testing with Probably Genetic and that genetic test gave us the answer—Mark carries the MAPT gene responsible for FTD. While there may not yet be a cure for FTD, knowing the cause has brought us immense relief and allowed us to move forward with clarity.
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Probably Genetic is changing the lives of patients living with severe, complex diseases. Our technology discovers undiagnosed patients online, analyzes their disease state using machine learning and at-home testing, and connects patients to relevant resources. In doing so, we help patients access diagnoses, clinical trials, and treatments as early as possible. Our data platform is used by drug developers and patient advocacy groups to develop and launch treatments for these patients.
- Founded in 2018. Probably Genetic has been helping patients and their families access no-cost genetic testing, counseling, and patient resources since 2018.
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