Individuals in the UK with Von Willebrand disease can now join the latest clinical trial.

Advance research; get compensated for your time. Confirm your diagnosis and interest below! 

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Patient survey

We’re conducting a survey to understand more about the Von Willebrand disease community and to enable access to more resources and information for those that are interested. Your email address will be used to share information about Von Willebrand disease and resources only, you can opt out at any time. Individuals should have proof of diagnosis to share.

Submit
DIAGNOSIS INFORMATION
1.
*
Have you been diagnosed with Von Willebrand disease by a physician?
Please note that participation is only available for those diagnosed with Von Willebrand disease.
2.
*
Do you know what type of Von Willebrand disease you have? (Type 1,Type 2, or Type 3)?
Thank you! Your submission has been received!
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The process

How does the process work?

Individuals diagnosed with Von Willebrand disease and located in the United Kingdom can now confirm interest to participate in the latest clinical trial from Hemab Therapeutics. Individuals will be compensated for their time and all travel expenses will be covered. Individuals must be 16 years of age or older at time of enrollment in the trial in order to participate. If you are interested, please follow these steps using our patient interest form: 

  • Confirm your Von Willebrand diagnosis
  • Provide your diagnosed type, if known
  • Provide your email address
  • Provide consent to be contacted by Probably Genetic and Richmond Pharmacology regarding clinical trial information.

You will receive an email detailing next steps.

Individuals in the United States interested in participating in a clinical trial may submit their information to be contacted at a later date. We hope to provide information on United States-based clinical trial participation soon.

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Von Willebrand

About Von Willebrand Disease

Understanding Von Willebrand Disease

Check eligibility

Here for something else?

If you have not been diagnosed with Von Willebrand disease and you would like to apply for one of our other patient programs, please select where you would like to start.

We will ask the necessary health information to confirm your eligibility for our free genetic testing, genetic counseling, or patient resource programs.

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5
After I received my results from Probably Genetic, my doctor suddenly began running all sorts of tests/asking all kinds of questions, things I had told him but he never heard. So THANK YOU. I can't thank your company, your testing enough. It led to breakthroughs and actions from my doctors that would have never happened without you.
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September 19, 2024
4
We've been searching for answers for over a decade and I'd almost given up. I'm so grateful that Probably Genetic has taken it upon themselves to make this kind of potentially life-altering testing accessible to families like mine.
Rob
September 19, 2024
Von Willebrand

About us

Find out more about us

Probably Genetic is changing the lives of patients living with severe, complex diseases. Our technology discovers undiagnosed patients online, analyzes their disease state using machine learning and at-home testing, and connects patients to relevant resources. In doing so, we help patients access diagnoses, clinical trials, and treatments as early as possible. Our data platform is used by drug developers and patient advocacy groups to develop and launch treatments for these patients.

  • Founded in 2018. Probably Genetic has been helping patients and their families access no-cost genetic testing, counseling, and patient resources since 2018.
  • Patient-first. Probably Genetic launched the first patient-initiated (patients apply for testing themselves), no-cost testing program in the United States.
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